Research
RASL

Presage

Michelle Kasprzak
Tue 15 Oct

PROJECT DETAILS

Partners
Erasmus MC, Amsterdam UMC – Location VUmc, Amsterdam UMC – Location AMC, UMC Utrecht, Fontys University of Applied Sciences, VU Amsterdam, Rathenau Institute, Maastricht UMC+, Rotterdam Academy, GenomeScan, Erasmus X, PGT the Netherlands.
Funding Program     Research along Routes by Consortia (NWA-ORC)
Action     Publications, public events
Duration     September 2022 – September 2026

 

PUBLIC REALM ENTRANCE AND SOCIETAL ALIGNMENT OF GERMLINE EDITING (PRESAGE); TOWARDS SOCIETAL ALIGNMENT OF HIGH IMPACT GENETIC TECHNOLOGIES

What do we think of adjusting the DNA of embryos? So-called human germline gene editing (HGGE) can potentially prevent genetic diseases, but it also calls into question what it means to be human. With PRESAGE, a consortium led by Erasmus MC is taking the next step towards aligning the decisions we make about HGGE technology with what we value and consider important as a society. To engage and connect all people with the topic, we employ art and journalism, and explore how we can give everyone a voice in decision-making about HGGE.

Consortium: Erasmus MC, Amsterdam UMC – Location VUmc, Amsterdam UMC – Location AMC, UMC Utrecht, Fontys University of Applied Sciences, VU Amsterdam, Rathenau Institute, Maastricht UMC+, Rotterdam University of Applied Sciences, Rotterdam Academy, Willem de Kooning Academie, GenomeScan, Erasmus X, PGT the Netherlands.